Friday, April 3, 2009

A Plan Of Attack!

My brain is on overload. Do not be afraid!

As many know I met with the oncologist today. I did mention my brain is on overload...right? Well, I'm going to try a mind dump since it's late. Nothing fancy.

My diagnosis is Nodular Sclerosing Hodgkin's Lymphoma. It is in my neck, chest and spleen. He said I have an uncommon form of it. I have always been unique though, haven't I?

I have several tests to get done next week. In Averi words, I need one to check out my heart, another for my lungs, another CT scan to use as a baseline (can't wait for that pee in my pants feeling), some basic lab work and a bone marrow biopsy. Something else was on that list but can't remember.

I go in on the end of the week for the bone marrow fun. He said he goes through the dimple in my butt....I'm curious as to which one...and pulls from the hip...unfortunately lipo is not included in this procedure. If the bone marrow comes back showing the disease then this treatment plan may be revised. As of now I'm at stage 3 cancer. If it's in the marrow then I will be considered at stage 4. Do not be afraid.

The plan of attack is.... I should start chemo treatment the Monday following the biopsy (day after Easter). I will go in every other week for treatment and the day after, will always go in for a shot to increase my white blood cell count. Two treatments = one cycle. I have to go through four cycles and then we will do another CT. If results show everything gone I will have two more cycles and be done. If it shows something then he will increase to four cycles and do more testing to make sure it's gone. Soooo, I'm looking at about 6-8 months of treatment.

He will give me 4 different chemo drugs. Can't for the life of me pronounce, spell or even remember them but he went through them one by one explaining side effects. I remember him saying I will loose my hair...which is sooooo ok with me AS LONG AS I loose everything between my arm pits and my toe hair. I'll consider myself jipped otherwise:) One drug may give me the runs but another may constipate me...so that balances things out... right? I can get mouth sores....ehh, ok. Tired and nauseousness is also common....been there done that two times for about a nine month stretch each (seriously guys I know there is a difference). No problem! Why??? Because there is no problem too big for my God! He is in control!

Max has been at EVERY appointment with me so far. He is an excellent question asker and I have grown to love him more every day. We have lots of military related paperwork to do (EFMP for you military folk that understand)...but pray that it's all made easy for him/us and the Doctor.

Kalee and Bear have and understanding appropriate for their age. We have been answering Kalees questions as she asks but am not overwhelming her with too many details. Bear said "no more nu-nu when you get the medicine, huh Mommy?"...so I take it he understands they will be out of commission after 6 1/2 years of honorable service.

I'm so tired...I need to sleep. I missed my regular nap today. I bet when I read this tomorrow I'm going to ask "What was I thinking?" I know better then to blog when I'm delirious...see how much I love you guys?

... God's love is unconditional.

Do not be afraid!

15 comments:

Joanna said...

I love you sooo much!!! I wish I could just give you a hug... even though you are strong in the Lord today must have been a lot to take in at one time. I will continue to keep you in my prayers!!! SENDING REALLY BIG HUGS!!!!!!!

Mom said...

I love you kid!

Joannemay Estoesta said...

I have nothing verbally to say, Averi...but perhaps the tears in my eyes says it all...

The Estoesta Clan in Japan

They call me CAT said...

BIG HUGS! I wish I was there to give it to you in person.

Martinez Family said...

Ummm did I mention that I absolutley LOVE you!? Seriously! I read these blogs and I am AMAZED! I have been worried all day and wondering how your appointment went:) I love how you can laugh about parts of this when all this is happening to you and coming down at once. You are continually in our prayers! As you know the Lord has a reason and a purpose , and I cant wait to see what he has in store for you! What an amazing example you are to all of us Averi , you know how to share the light of God to everyone but also put a smile on each of our faces! I hope you have a fabulous day , and I will continue to read for more updates!

Savannah's Mama said...

I am going to agree with Joanna and just say...I love you, I am sending hugs, and I am praying! God is amazing....but so are you!

Paula said...

AWWWWWWW AVERI I LOVE YOU AND GOD IS GOOD HUN YOU ARE ALWAYS IN OUR PRAYERS WE ALL LOVE YOU ,Grandma & grandpa sends their love and prayers to all of you.

Elisa said...

Hey lady! Did they tell you to sleep when you feel the need? Was this the consultation from the cancer center? Sorry I'm full of questions?
Oh one VERY important question, was the "Dimple" and insult?! LOL!!!!
I would have decked him had he said he was going to do it through one of my dimples! HAHAHA!! Just kidding. I know what you/him meant. They are putting you under for this part right?

Hey one more time, repeat after me, "BALD IS SOOOO FREAKIN" SEXY!!!!"

I think I may have some pretty cool head gear from when I lost my hair. I'll check and then send them your way. But before that happens I'm going to have them anoint them with oil.
You will be in our prayers and God plan for you is in affect! As you say everytime God is in control!!!!! YAY to our Lord Jesus Christ!

Martinez Family said...

YOU ARE AN AMAZING WOMAN!!:)

Lillyann's Mommy said...

Love ya avery! You are such a strong woman. I wish I could say something that would make everything better and make you feel at piece. Just know we are praying for you and we love you.

Love Odessa

Anonymous said...

Averi - You make me laugh and cry at the same time! You were there for me when I needed the love and support of a friend and now my friend, I am on my way to repay that debt. I'll see you in a couple of weeks so hang in there and keep up the prayers. Chuck and I are doing the same for you on this end. We love you kiddo!! Kiss the kids for us and Chuck sends Max a little squeeze too...........
Cindy

Claudia Rizzi said...

God DID make a special one when he made you Averi!

Hugs, love and prayers being lifted up!!

With love,

Claudia

Anonymous said...

Averi... Elizabeth directed me to your blog and I just wanted to share this with you although I'm sure your familiar with it...

The Serenity Prayer
God grant me the serenity
to accept the things I cannot change;
courage to change the things I can;
and wisdom to know the difference.

Living one day at a time;
Enjoying one moment at a time;
Accepting hardships as the pathway to peace;
Taking, as He did, this sinful world
as it is, not as I would have it;
Trusting that He will make all things right
if I surrender to His Will;
That I may be reasonably happy in this life
and supremely happy with Him
Forever in the next.
Amen.

--Reinhold Niebuhr

My thoughts and prayer are with you and your beautiful family

Rene (Beth's Mom)

Anonymous said...

I LOVE YA TROOPER AVERI!!!!

LOOK UP INTO THE SKY AND SMILE AND THANK THE GOOD LORD!!!

DONT KNOW WHAT HAPPENED BUT ITS GIVING ME A HARD TIME LEAVING COMMENTS

AUNTIE ANGIE

Dre said...

Usually in times like these I would share of God's love and sovereignty but you clearly have put ALL of your trust in Him! Praise the Lord for people like you! If you dont mind I am going to continue to share with you =) This scripture came to my mind today as I thought and prayed for you...

From Paul's letter to the Corinthians: 2Cr 12:7-10
... Concerning this thing I pleaded with the Lord three times that it might depart from me. And He said to me, "My grace is sufficient for you, for My strength is made perfect in weakness." Therefore most gladly I will rather boast in my infirmities, that the power of Christ may rest upon me. Therefore I take pleasure in infirmities, in reproaches, in needs, in persecutions, in distresses, for Christ's sake. For when I am weak, then I am strong.