Got my PFT and MUGA Scan today. I know, whats that mean? It means my hearts a still pumpin' and lungs are still breathin'. ;)
Immediately upon my arrival to the hospital I found my way to surgery waiting room. Today one of the ladies from Bible study had atotal knee replacement. I spent a few minutes chatting with her family and headed down to make my appointment in time. The PFT was just what I remembered. Funky nose clothespin and a my special seat was in a all window pressurized room thingie....only this time I got a breathing treatment after my first series of tests showed my "coughing" complaint. What is it with me and all these special treatments? My "post breathing treatment" tests were much less cough traumatizing but the Albuterol gave me shakes. It's been so long since I have used an inhaler that I forgot about that part. :0 I'm curious to see whats going to happen next because even with the breathing treatment, the charts were showing 1/3 of what it used to be. We expected it to decrease, but not that much. Blah. I went back to radiology and asked to use the restroom before they brought me in for the MUGA Scan. The nice lady behind the desk sent me to the nearest one on the other end of the hospital. Seriously? I got lost (even though I have been there several times before), walked in circles and by-golly was about to pull the 'I have no energy to walk that far find me a closer one' cancer card for the first time...but I didn't. Thursday we find out what's next...hopefully Albuterol and chemo so I can hurry up and get this done with already. ;)
As for the MUGA Scan...that was easy. I walked in and she ran an IV, put a little heparin in a tube and filled the rest with my blood....to "tag" my red blood cells. I love how she used the word tag. How do I make my white blood cells "it"? Or can I tag someone else to be "it"? Ehhh. Never mind. I don't wish this mess on anyone. So once my red blood cells were "tagged" and radioactive she put them back in my body and took pictures. Three different angles times 2 minutes a piece and I was outta there. Back to check if our favorite Church Grandma was out of surgery... and they were just sewing her up. :) My prayers are with her for a speedy recovery.
That was so exhausting I came home, ate, and napped. Wshew!
I need to get my coupons filed in my coupon box because I think I'm going to be crazy and attempt grocery shopping right after payday without the husband and kids. O.o
Quote of the day: "I put tape on my Daddy's butt so I don't have to 'mell it." -Bear
Monday, August 31, 2009
Friday, August 28, 2009
Boys: Born with two and somehow they multiply.
Last night while taking a bath Bear decided to pull his dangling body parts and squeeze them realizing something was in there.
Me: Buddy stop doing that, your going to twist them or hurt yourself.
Bear: But Mom, there is something in there...what is it?
Me: They are called testicles son.
Bear: What are 'des-sit-toles'?
Me: Um, a reproductive organ...(then I rethought his age) kinda like balls and only boys have them.
Bear: Balls? (with his expressive face) What color are the balls in there?
Great! I shouldn't have said that. Today he is still asking what color those balls are.
Me: Buddy stop doing that, your going to twist them or hurt yourself.
Bear: But Mom, there is something in there...what is it?
Me: They are called testicles son.
Bear: What are 'des-sit-toles'?
Me: Um, a reproductive organ...(then I rethought his age) kinda like balls and only boys have them.
Bear: Balls? (with his expressive face) What color are the balls in there?
Great! I shouldn't have said that. Today he is still asking what color those balls are.
Thursday, August 27, 2009
Errr....
Not that I was looking foreword to treatment today... but I'm bummed that my end date will be pushed back. The combination of my complaints set off an alarm and they decided to do another MUGA scan and PFT (heart and lungs) before I continue my cycles (3 treatments to go and I get another PET scan).
I'm scheduled for chemo next week pending the test results.
I was never good at ditching the classroom, but a decade later I figured it out with the doctors.
...I think....until he reads this. ;)
I'm scheduled for chemo next week pending the test results.
I was never good at ditching the classroom, but a decade later I figured it out with the doctors.
...I think....until he reads this. ;)
Sunday, August 23, 2009
Más Visitar a la Familia
We had more family in town this week. Max's Grandma and Grandpa from Arizona flew into Georgia to visit his Great Aunt Pam and Uncle Chancho. This weekend Pam and Chancho drove them here to Virginia to visit us. We thoroughly enjoyed having them over. After the spoiled Grandson got his green chili chicken enchilada meal we took them to Krispy Kream since Grandma has never had a fresh hot off the belt glazed doughnut. Unfortunately we missed the "hot" sign, but still enjoyed the artery clogging occasional piece of bliss.

Chancho, Pam, Grandma, Max, Grandpa.

Mmmm, stuffing the face and lovin' it.
After my homemade banana sour cream waffles and Krispy Kream doughnuts, we took off to see the USS WISCONSIN Hampton Roads Naval Museum.
This is where he would like to go when I cook.
Yeah, um, you can imagine....
Funny enough I have a picture of us in front of this museum ship some 8 summers ago...but for some reason I cant find that "marshmallow" picture of myself....
...and when Max offered to look for that picture! :P
Koi! Makes me remember Chief initiation in Japan when all the new select spouses went to Admiral Kelly's house for a tea. My friend and I were astonished at the beautiful Koi pond...ok, amongst everything else on the amazing quarters.
That's all folks! At least this time.
Chancho, Pam, Grandma, Max, Grandpa.
Mmmm, stuffing the face and lovin' it.
After my homemade banana sour cream waffles and Krispy Kream doughnuts, we took off to see the USS WISCONSIN Hampton Roads Naval Museum.
Grandpa and Grandma in front of the USS WISCONSIN
Kalee and Bear feeding the...
Thursday, August 20, 2009
Grammi and Gumpa's visit
Paula Max's mom, and Grandpa came out to visit this past weekend. It was wonderful to see Grandpa again and we are thankful Paula spent a few days with us and the kids. It was nice for Max and the kids to get their mind off my 'crappy Saturday' (my worst day after treatment) and have time with family. Once I got past the icky-do-nothing-and-I-mean-nothing day, we took some pictures after Max got home from work on Monday.
Me my crazy MIL Paula.
Saturday, August 15, 2009
My Girl
Me: Babe, please cover your mouth when you cough (he was more like clearing his throat)...I seriously don't want to get sick.
Max: Ok. I'll cover my mouth when I cough and cover my butt when I fart.
Kalee : (blurts form the back seat of the car) Or just sit down!
Max: Ok. I'll cover my mouth when I cough and cover my butt when I fart.
Kalee : (blurts form the back seat of the car) Or just sit down!
Friday, August 14, 2009
Date night at ER and My Good News Report!
I know, I know. Why the ER visit last night? I'll start with that...but beware I still may have some narcotics lingering in my system.
Normally after chemo I come home and sleep. Usually don't feel up to eating which is normal, but I force a little something down so I don't lie when I said I ate something. Since my taste buds can't stand water for about 3-4 days after chemo, I almost always have watermelon on hand for the water factor...but couldn't hold it in. Yesterday I visited the toilet 7 times in about an hour and a half, got really weak, dizzy, lightheaded, kidneys aching, had the chills, Max noticed my skin was blotchy and I just flat out felt horrible. A friend (also a Corpsman....or in medical field for you non Navy people) brought us dinner and suggested calling my doctor, so Max did. "Hi Dr. A, my wife's broken." Such a good husband I have...lol. My doctor told Max to bring me to the nearest ER and have them run fluids. Upon arrival my temp was 99.3 (I normally run 97ish) and my blood pressure was 80/55 funny enough that is normal for the day after treatment and they always give me that 'your alive?' look. I gave them my list of complaints and immediately they got me hooked up and drugged up. I'm pleased to say that this morning I feel like a million bucks compared to my normal after chemo day. Praise God!
Now for the "Good News" per the PET/CT report...
I gave them a CD with all my previous CT and PET scans from Portsmouth Naval for comparison purposes and here are some things I want to share from the report.
Funny enough the scans picked up "somewhat prominent free fluid at pelvis, slightly more than physiologic, nonspecific". We already knew this but I'm amazed at how much that $5,000.00 PET scan actually picks up. Amazing!
Basically this means I only have 3 more treatments (which is what I have been praying for) and I will go for another PET scan as planned to look at the spot in my chest and spleen. I see the light...I feel the wind...I smell the flowers at the end of the tunnel!!! Glory to God!!!
Can you see my smile?
Normally after chemo I come home and sleep. Usually don't feel up to eating which is normal, but I force a little something down so I don't lie when I said I ate something. Since my taste buds can't stand water for about 3-4 days after chemo, I almost always have watermelon on hand for the water factor...but couldn't hold it in. Yesterday I visited the toilet 7 times in about an hour and a half, got really weak, dizzy, lightheaded, kidneys aching, had the chills, Max noticed my skin was blotchy and I just flat out felt horrible. A friend (also a Corpsman....or in medical field for you non Navy people) brought us dinner and suggested calling my doctor, so Max did. "Hi Dr. A, my wife's broken." Such a good husband I have...lol. My doctor told Max to bring me to the nearest ER and have them run fluids. Upon arrival my temp was 99.3 (I normally run 97ish) and my blood pressure was 80/55 funny enough that is normal for the day after treatment and they always give me that 'your alive?' look. I gave them my list of complaints and immediately they got me hooked up and drugged up. I'm pleased to say that this morning I feel like a million bucks compared to my normal after chemo day. Praise God!
Now for the "Good News" per the PET/CT report...
I gave them a CD with all my previous CT and PET scans from Portsmouth Naval for comparison purposes and here are some things I want to share from the report.
FINDINGS:
1. Lower cranium and neck: Unremarkable
2. Chest: Lungs clear. posterior to the manubrium, not hypermetabolic soft tissue 2.3x1.0 cm,, indistinguishable form normal thymus; slightly decreased form 3.5x1.8 cm on prior PET/CT, remarkable resolution of prior hypermetabolic activity.
3. Bones: Hypermetabolic generalized marrow activity presumably iatrogenic, benign. No destructive changes.
4. Abdomen and pelvis: Spleen not enlarged; slightly asymmetrically prominent metabolic focus SUV max=2.7, approximately 1.2 cm, inferior spleen- this is so subtle it would not be commented upon except for the report of a hypermetabolic leison.
IMPRESSION:
1. No evidence Hodgkin's lymphoma at neck, chest, pelvis- compared with PET/CT 4/8/9, complete resolution hypermetabolic activity...
2. Subtle asymmetric minimally hypermetabolic small focus inferior spleen is nonspecific. -less hypermetabolic than previous and potentially normal variation -persistent lymphoma possible.
Funny enough the scans picked up "somewhat prominent free fluid at pelvis, slightly more than physiologic, nonspecific". We already knew this but I'm amazed at how much that $5,000.00 PET scan actually picks up. Amazing!
Basically this means I only have 3 more treatments (which is what I have been praying for) and I will go for another PET scan as planned to look at the spot in my chest and spleen. I see the light...I feel the wind...I smell the flowers at the end of the tunnel!!! Glory to God!!!
Can you see my smile?
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Grammi and Kalee