Wednesday, April 29, 2009
Hot Dog!
Tomorrow afternoon I go in for a CBC (complete blood count). I'll keep updating.
My mouth feels way better...but now my body aches. They told me the shot they gave to increase my white count would cause bone pain...but honestly I thought since I didn't feel it yet, I got past it. Obviously not. Blah. It's time for more pain reliever and to climb into bed.
Tuesday, April 28, 2009
Humm...
My kids are the cutest even when they stink from playing outside.
I have the best husband in the world that loves me so much and takes great care of his family.
I want the ice cream man to come by so I can buy a fudgecicle!
Thats all.
Monday, April 27, 2009
Whatta Day
Woke up unable to open my mouth. Good thing we knew some sign language. At least Kalee and I were able to communicate. I had to write notes to Max. Sucks trying to yell "brush your teeth" in ASL while your kids aren't even looking at you. Max spent the morning on the phone with my Doctor and the pharmacy. They gave me something better then magic mouthwash. It's called Clack's. Whatever. It works fantastically! I'm a happier camper now!
I want to thank everyone for their comments and prayers. I don't always have time to respond to each and every one and thank them individually, but I want you to know they do not go un noticed. You guys always put a smile on my face.
Off to take a shower, pop a vicadin, brush my teeth, gargle with Clack's and sleep. Aren't you jealous?
Sunday, April 26, 2009
Mouthy Suckers
I stayed home from church today. I have slept more then you could imagine. My friend Susan came over with a smoothie in hand knowing that would be the reason I let her in. She is so sweet. I was even able to thank her for removing a tick she found on the back of Bear's neck within seconds of walking in the door. Last night Max found one on Kalee. Ticks are new to us but having tick infested kids is a different story. I have heard people talking about how this year they are pretty bad....guess I get to research a good natural way to keep those disease carrying 'suckers' away from my kiddos.
Max went to church but came home injured. Long story short he is currently in ER getting his toe assessed. Fortunately we have wonderful friends all over. Amber brought Kalee home from AWANAS while our other friends that just got here from Japan and are still adjusting to the time difference, took Max to ER. After 8 hours you'd think the bleeding would stop?
...and how Bear managed to lift his nail too tonight is beyond me.
Never a dull moment in this house I tell ya!!!!
Saturday, April 25, 2009
It Hit Me
Friday, April 24, 2009
Day 2 After Chemo
I learned I should avoid fresh produce (because my body doesn't have what it takes to fight infection) and use an electric razor (once again because of some kind of infection). Humm. Should I invest in a razor if I'm going to loose my hair soon? Nah. I'm too cheap. Not to mention I'm a chemo patient now. I should love every piece of hair on my body while I can! Wouldn't Max just love it if I could make a pony tail with my leg hair?
Today some of our great friends from Japan came over. It was wonderful to see them. They just left with instructions for me to get to bed...and I'm here updating you peeps. ;)
Off to bed now. Curious as to what tomorrow brings. :)
Thursday, April 23, 2009
Part 1 of the First Cycle
Here is what my medi-port looks like. It's right under that white-ish circle below the incision. You can even slightly see the tube under my skin as well, that leads towards the neck.
The prayer quilt I got from one of the sweet ladies at church. I just love it!
Wednesday, April 22, 2009
Here I Go! It's On Now!
I hear a little voice from upstairs...."Mooooom, come wipe my buuuuuuuuut!" My response "Sorry son. If I do that exceeds the a once a day but wipe limit." "What? Mom? You wipe me peas?" Awww, he used his manners...how can I not?
Tomorrow it is! Tomorrow I go in for my very own treatment. No, not a hot oil treatment! My first chemotherapy treatment. It's on now! Does cancer not know how I can put up a fight? Ohhhhh, let me show you!
I'm ready. I think. Didn't get Bear's hair cut like I wanted to. Might just have to suck it up and go pay the money to get it done. I never saw the reasoning to pay someone else to mess it up when I can do that myself. I have thoroughly scoured the bathrooms so cutting it now will ruin my work....and it's too chilly outside. I didn't get to organize Max's side of the closet like I wanted either. I forgot how much he had stored in his estate room on the ship. Oh well, I'm not going to sweat the small stuff...and it's ALL small. Laundry is done, sheets are clean, bathrooms are disinfected, kitchen is sanitized, everything below four feet is dusted (courtesy of Kalee), floors are steam mopped and vacuumed. Can't complain. It only cost me sending Max to Lowes to get them out of my hair to get it all done. Let me tell you, it would have been cheaper to pay someone to come clean for me. I forgot to ask for the card before he left. ;)
No promises I will update for the next 3 days or so. I hear the day of treatment I will be tired, and two or so days after I will be feeling the side effects. Secretly, I'm trying to convince Max to take me to the airport to welcome some of our good friends back from Japan. He's such a good husband...didn't say yes or no... instead it was a "let's see how your feeling".
Of to get ready for the Girls Gone Godly study and put stuff together for the kids tomorrow.
Do not be afraid!
Monday, April 20, 2009
Wash, Disinfect, Clean, Sanitize!
I start the chemotherapy treatments on Thursday morning. I have an appointment at 8:15 (I think). I will get the results of the MUGA scan, PFT, and the bone marrow biopsy then and if all came back showing my body can handle the chemo, I start right there.
My medi-port area is not as purplish as it was yesterday. It graduated to a yellowish color. Hopefully tomorrow I can get these steri strips off and better asses the art.
Max is going to be working on the garden tomorrow if all goes well. I'm looking forward to kicking them all out and cranking up the music to motivate me to clean and disinfect EVERYTHING. Max's Grandma (AKA: Guma) sent me the coolest sanitising mop that requires no chemicals. It's not just any steam mop. No. It's a super cool Haan Floor Sanitizer! Grandma told me it's my gift but for Max to use. :) I like her thinking. She even got me the tray attachment to do the bed, pillows and my throw rugs downstairs. How cool is that? I have used it several times and it works beautifully.
Grandma is also one of three people that can touch my laundry. The other two being my Mom and my Nana. All three of them taught me how to do it, I think that's why I'm so picky. Don't worry, I have it all figured out. Max overnights Grandma a stinky box, she washes and sends them back. Simple huh? Kalee is a decent sorter and just this week learned how to operate the washing machine. She gets a dollar per load. What? Child labor laws? No, it's called money saving ideas my friends. I teach her how to do it so we don't have to replace our wardrobes because everything is beautiful pinkish color. No really, Max isn't that bad. He learned why under wires don't go in the dryer...the hard way...but he knows now. ;) I don't think I'll have a problem washing. After all, the washer and dryer are only 5 steps away from my bedroom door. Humm, but I can pawn off the folding and putting away...at least for the few days after treatment.
Score!
Sunday, April 19, 2009
Sunday's Smile
Yesterday morning when I woke up I sat up in bed and nearly screamed. Lets just say everything went south even with a shelf camisole on. Once I got up and realized I needed to get cleaned up quick to prop these girls back up and alleviate the pain, all was good. The port-hole is only a few finger below the collar bone but the shift of weight was enough to make me uncomfortable. We took the bandage off last night and it still looks kinda funky. When it's not so colorful I'll post a pic.
Yesterday we had a high school friend Renee and her boyfriend Ryan over. They came to deliver a cooler full of cooked ready to freeze gourmet food and a care package full of useful things from them, Dani and Inge. Those people put together a sweet care package. It had everything from a scarf to organic peppermint with thyme hand sanitizing spray, organic green tea, all natural ginger snaps, natural ginger slices, ginger-ale, some cool reading material amongst several other things to make me feel better while going through chemo. I have to say that when she told me they were going to do meals I realized I needed to set aside my picky-ness. Most people freeze in plastic full of dioxins such as Rubbermaid (anything but Tupperware brand) but not Renee. Nope, she brought the stuff over to freeze in glass with room for expansion. My crunchy friend knows me better than I thought she did. She knew me pretty well in high school but ...ut-hum years later while in a different stage in life she still has me figured out. ;) Next time I see them the platters will be washed and collecting dust ready to be returned. Fortunately I'm just about guaranteed to see them in June...for unfortunate reasons of visiting the same court house for the same reason Max did in fall. Thanks Renee, Ryan, Dani and Inge for everything!
It's amazing to have some great friends that say or do some of the sweetest little things that make what I'm going through a more comfortable.
I love you guys!
Now I get to go finish cleaning up deviled eggs that my angel dropped.
Saturday, April 18, 2009
Broccoli Salad and a Smoothie
I got made fun of. I was in tears yesterday because I was not going to be able to eat. What the heck? Yes, I know I have cancer....and I am worried about food. Strange, I know.
I got a call about 10:00 from surgery asking what time I was told to go in. I said 12:30. The lady put me on hold and came back to ask how soon I could get there. Are you serious? By 11:00 I was in there. We didn't have time to drop the kids off with Susan. Max ran out to get them food while I got checked in. I think it was great for my children to see me gowned with IV in hand...perfect opportunity to answer questions. While waiting I called my friend Amber to ask about the meal for life group. She just so happened to be one exit away from passing the hospital on her way to Susan's house. How perfect was that? Max ran down to the car, moved car seats, and returned to me. Romy (Amber's husband- obviously some good family friends) walked in to sneak my kids some cookies. Since the kids were gone, Max ate them right in front of me. I was starving and he leaned so close, I could smell the chocolate and feel the crumbs on my sheets! Brat!
So tell me. What are the chances of needing a procedure at a hospital that your friend works at? What are the chances that particular friend happens to be an OR tech? What are the chances that he got to do my case? For me, awesome! I did request Romy and was so excited when I heard that he got my case. Nah, it's not weird. But I'm also one that had no problems with having my brother and best-friend's husband in the room when I delivered Kalee. I knew Romy would be the first one in prayer if something went wacky...and would tell Max exactly how I was in the operating room. Evidently I wasn't the best patient. I talked to much. Surprise, I know! They got me good and drugged I was out, and unlike my last surgery I don't remember hearing voices...and again don't even remember going to recovery. I do recall telling everyone that passed "your not who I'm looking for". I bet that would be nice to hear, huh? Romy told me I asked for broccoli salad (Amber makes it the best) and a smoothie as I was waking up. Sounds like me. Yeah, I bet tomorrow at Life Group I'll hear more about how wonderful I was, while out. I'm thankful he was willing to do my case. He has 3 kids under 6 so I knew he could count. Only left one thing inside me. A medi-port. ;)
After surgery, we went to grab me a smoothie and head over to Wayne and Susan's for the kiddos...where we met Amber and Romy and was enlightened about me not shutting up in the OR. We sat around for awhile to see how I was feeling. Are you kidding? I had my mind made up that we were going to have girls night out. We did and we had a great time. Dinner and shopping...any gals definition of fun. I got me a pair of cool sunglasses to sport with my nifty head apparel this summer and a new non-nursing bra for these ladies to be positioned in a way they don't pull on the incision area. I'm excited. We talked, laughed, shopped clearance racks and had no kids around...not even the ones we are married to.
Thursday, April 16, 2009
Already Hungry
The PFT consisted of me breathing. Surprised? It took all of a few minutes. The worst part...I had to clamp my nose closed with a funky looking clothes pin.
Fortunately, I was able to get in for the MUGA scan immediately following my PFT even though the appointment times were 4 hours apart. I forewarned the lady and she kindly allowed me to lay down prior to giving me an IV. She took some blood, did something with it for about 30 minutes to make it radioactive and shot it back in me. As she prepared to put it back in me I asked to see the label to verify it was my blood...because I'm weird. Funny enough it wasn't labeled. What? She did assure me that I was an only and no other blood was back there...otherwise she would have it labeled 20 ways. Ok. That's cool. Other then the person that left before I was even seen, it was a ghost town. They took 3 different angle shots at my heart to see how it was pumping. This is something I get before chemo, possibly during chemo and after it's all done. I'm seriously realizing I have to search for a compassionate bone in my body for those that complain about getting poked...as I did after having that episode of passing out and a seizure at the age of 18. All this is a lesson. ;)
I got my call for tomorrows medi-port surgery. I go in at 12:30 and am scheduled for surgery a couple hours later. I'm totally not thrilled I have to fast after midnight. No food or water. Those that know me know I HAVE to eat breakfast. I can miss any other meal but I'm one to rise, brush my teeth and eat immediately. I'm telling myself I wont be a grump. Nope. No pouting because I don't get to eat breakfast...or lunch.
I'm clinging on to the possibility that the Doctor may move faster then his schedule. :) ...so I can eat!
Tuesday, April 14, 2009
In Port on Friday!
Once again after today's series of events (related to not accepting my insurance) we got another reminder how God has His hands in this situation, and He is in control. Within a few hours, approval was faxed over and I was able to be seen by an out of network Doctor. I had no problems going to Portsmouth Naval for the procedure...just tell me what to do! All this civilian insurance mess is so new to me. I need someone to grab my hand and walk me through it. He did! ;) I am scheduled to get the medi-port put in Friday morning. During the consult the doc asked if I had any questions. I calmly asked "Will I be able to feel or see it?" I just about busted out in laughter when he said "Well, as thin as you are...." What? Can he not see my rear? Oh I forgot...this is a different Doctor then the one that dug into my butt last week. Yes it may be slightly visible but even my tank tops should cover it. He was sure to make me aware that I would have a small incision below my collarbone and another 2 on the side of my neck. I told him how that was the least of my concerns. Looks like the loaner biopsy incision will have a few others to accompany it...all on the same side. I can get this little buddy removed after treatment if I don't become too attached to it... and I hear it just makes getting poked so often much easier.
Tomorrow is my only day off. We have a busy week/weekend ahead of us. I got tons to do before some friends head down here from DC in a few days. I'm sure she doesn't want to step on the edible Easter grass (leave those unique findings to my Step-Mom) that has made it's way around the house.
Monday, April 13, 2009
Port? What Port?
Tomorrow morning I have a consultation with another Doctor to discuss getting a port-hole. ;) Since every other week this ship will be pulling in, it's best for me to make the ammo on-load as easy as possible. As of right now all I can tell you is it's a small device inserted under my skin below my collarbone. It will serve as an IV so they don't tear up my veins. I'll post more on that tomorrow when I know more.
Saturday, April 11, 2009
A Bum With A Hole.
Yesterday I had a biopsy of my bone marrow. I thought it was best for me to avoid the computer since I already made a fool of myself around the friends that have been watching our kids. I was loaded up. Yes, this chick that never took Tylenol because of the 'chemicals' took Valium. Despite the name, it didn't reduce my volume. But fortunately I wasn't slapping leprachuns off peoples shoulders either. Dr. Atienza (my oncologist) is fantastic. I think he likes digging into peoples butts. He laughed the whole time...which made me laugh...and in turn made my butt jiggle...and probably is the reason for the nice little eraser size hole. :)
So when I say he went in the dimple... where do you think that was? I thought about the part that inverted when you squeezed your butt cheeks together. Nope. That's not where he ripped me a new one. I got up on the table, layed on my stomach and pulled my pants about 3/4 down my butt thinking he was going in from the side. He walked over and ever so slightly pulled my underwear down and started feeling for bone. What? That's not my butt. He went into the licence plate part. That sensitive part that if someone smacks me, I turn around and tear them up. Yeah, that part. A huge tray of material was wheeled in and in order to avoid looking for the needle I started staring at the wall. I voiced my opinion then...I was rather upset that he didn't have a magazine article taped on the wall for me to read. I'm not so sure if the numbing part was worse... or the drilling into the bone... or the marrow withdrawal. I told him I was thinking of a song to scream when the lydocaine went in...he told me to sing it...but I refused because I didn't want him to pawn me off to a different Doctor after. When I felt him
Results wont take long to come back. But he doesn't want to see me until after the lung and heart tests (that I take this Thursday) come back in. Can't blame him. He needs time to recoup from yesterdays visit. :) We are scheduled to discuss all the test results the morning of April 23rd and that is also the day my fight begins. I start my very first chemo treatment.
We also decided to get me a porthole...I mean medi-port. I'll talk more about that when I get my appointment scheduled for the procedure on Monday.
**On a side note- I met and talked to a young lady in Old Navy today while shopping for a birthday present. I know God placed her there to talk to me. She was about my age and just finished chemo a little over a month ago. I'm amazed at the little things God does...but in awe daily of the big picture!!
Friday, April 10, 2009
Butt I'm Tired
Wednesday, April 8, 2009
A Glow in the Dark Full Moon
This Friday I go in for the biopsy of my bone marrow. A great opportunity for me to moon the Dr and him not be offended. I have my PFT and MUGA scheduled for the end of next week. I can't start chemo until those results get back to my Oncologist so I'm assuming my start date will be pushed back some.
Off to sleep again. I cat nap often these days. I need to be ready for the Girls Gone Godly study tonight. I'm excited because we will be talking about "Worry Warts"....you know, something that applies to none of my family or friends...
Worry never empties tomorrow of sorrow, but it does empty it of its strength. Don't let anyone rob you of your confidence in God. Know His Word. Hold on to His hand. He will make your impossible mission possible and your life so much more than bearable. -Barbara Johnson
Monday, April 6, 2009
A Little Bit of Everything
On April Fools Day Max had duty. Kalee didn't realize that it was April 1st until about dinner time...so no, she didn't switch the cereal bags. Instead, when I went to brush my teeth that night my toothbrush was no where to be found. I shout "Anyone know where my toothbrush is?"....Kalee comes in to the bathroom with a giggle, "it's under the sink, April Fools!"
The other night she was playing with Little-Ann (AKA: Lilly-Ann, Diddle-Dan...) and out of the blue asked "Mommy, do dogs have to be married to have babies?" WHAT?? Um, well....yeah, that was so unexpected and I had no time to rehearse a proper answer. "Dogs are a little different then humans honey. They learn about each other by sniffing each others butts. You don't see me sniffing butts when I meet someone do you?" Kalee, "Ohhh, but how do they have babies?" "Well, it still takes a male dog and a female dog just like it takes a woman and a man." Fortunately that was enough to hold her over until next time... Wshew! I need to order this book and keep it on hand for us to read together. I'd rather be prepared for when that time comes that the one or two things I say arent enough to answer her questions.
Saturday night, I participated in welcoming my Sailor friend Amber, home from the sandbox. She left her husband and 3 children days after Thanksgiving to serve as a Sailger in the Narmy (not a typo...newer terms for IA). I'm so glad she made it back to her family. We went out to eat with 2 other couples that attend the same life group...and I tell ya I have never laughed so hard. I walked out of the restaurant with a huge smile and sore ab's. Those couples bring out the best in us...I love them!
Break is over. Must get Kalee started on her next assignment so I can continue my list of phone calls for testing and such this week. Chemo should start a week from today. Wow!
Friday, April 3, 2009
A Plan Of Attack!
As many know I met with the oncologist today. I did mention my brain is on overload...right? Well, I'm going to try a mind dump since it's late. Nothing fancy.
My diagnosis is Nodular Sclerosing Hodgkin's Lymphoma. It is in my neck, chest and spleen. He said I have an uncommon form of it. I have always been unique though, haven't I?
I have several tests to get done next week. In Averi words, I need one to check out my heart, another for my lungs, another CT scan to use as a baseline (can't wait for that pee in my pants feeling), some basic lab work and a bone marrow biopsy. Something else was on that list but can't remember.
I go in on the end of the week for the bone marrow fun. He said he goes through the dimple in my butt....I'm curious as to which one...and pulls from the hip...unfortunately lipo is not included in this procedure. If the bone marrow comes back showing the disease then this treatment plan may be revised. As of now I'm at stage 3 cancer. If it's in the marrow then I will be considered at stage 4. Do not be afraid.
The plan of attack is.... I should start chemo treatment the Monday following the biopsy (day after Easter). I will go in every other week for treatment and the day after, will always go in for a shot to increase my white blood cell count. Two treatments = one cycle. I have to go through four cycles and then we will do another CT. If results show everything gone I will have two more cycles and be done. If it shows something then he will increase to four cycles and do more testing to make sure it's gone. Soooo, I'm looking at about 6-8 months of treatment.
He will give me 4 different chemo drugs. Can't for the life of me pronounce, spell or even remember them but he went through them one by one explaining side effects. I remember him saying I will loose my hair...which is sooooo ok with me AS LONG AS I loose everything between my arm pits and my toe hair. I'll consider myself jipped otherwise:) One drug may give me the runs but another may constipate me...so that balances things out... right? I can get mouth sores....ehh, ok. Tired and nauseousness is also common....been there done that two times for about a nine month stretch each (seriously guys I know there is a difference). No problem! Why??? Because there is no problem too big for my God! He is in control!
Max has been at EVERY appointment with me so far. He is an excellent question asker and I have grown to love him more every day. We have lots of military related paperwork to do (EFMP for you military folk that understand)...but pray that it's all made easy for him/us and the Doctor.
Kalee and Bear have and understanding appropriate for their age. We have been answering Kalees questions as she asks but am not overwhelming her with too many details. Bear said "no more nu-nu when you get the medicine, huh Mommy?"...so I take it he understands they will be out of commission after 6 1/2 years of honorable service.
I'm so tired...I need to sleep. I missed my regular nap today. I bet when I read this tomorrow I'm going to ask "What was I thinking?" I know better then to blog when I'm delirious...see how much I love you guys?
... God's love is unconditional.
Do not be afraid!
Thursday, April 2, 2009
I'm doing the...
Wednesday, April 1, 2009
My Dr's Appointment
I have been on the phone all morning trying to speed up this process but it's not getting me far. Right now I'm waiting for Portsmouth Naval's Oncology Clinic to either approve me to be seen there or approve me to be differed out to a civilian. Once that happens I will be able to make an appointment and know my treatment plan.
I know. Hurry up and wait. Welcome to my life as a Navy Wife. That's what keeps things interesting with this lifestyle.